"Books are the perfect entertainment: no commercials, no batteries, hours of enjoyment for every dollar spent. What I wonder is why everybody doesn't carry a book around for those inevitable dead spots in life."~~~Stephen King

Wednesday, May 8, 2024

Just some thoughts…

 🔅I am thankful for a compassionate LLMD and husband who understand how I have to go through my tick-borne disease treatment very slow, especially with having two MTHFR gene mutations. Because of these mutations I recently had to stop taking two supplements and one drug due to having terrible reactions. I’m not going to sugar coat this—it’s going to be an extremely rough road with antibiotics, supplements, herbs, and whatever else that is part of the protocol—and subsequently there will be a lot of herxing. I’ve read, not necessarily comprehended, about some of the things I’ll have to go through. I don’t think I’ll be able to do the entire protocol—for me it would be having to address and treat every single organ and cell in my body. As time goes along I’ll discuss my concerns with my LLMD and my husband. There’s some things I’ll just refuse to do, plain and simple. 

🔅I have been experiencing some emotional turmoil because I’ve been receiving treatment for nearly seven years but only a small percentage of my health problems were addressed. I’m thankful I had this treatment because I think it helped, but yet it didn’t help since the rest of my health problems weren’t given the proper attention. Hence those health problems escalated. It would be kind of like having your exhaust system on your car replaced but the mechanic left the damaged muffler intact. 

🔅At my age I wonder if it’s worth it to put myself through all this, but I’ve got to have some quality to my life. I’m tired of having no social life and basically being homebound, except for an occasional spin in my wheelchair. I’ve had to recently cancel two activities and that made me extremely sad, especially when one was a graduation party for one of “my girls”. 

🔅Please don’t get caught up in someone “understanding” exactly what you’re going through, no one fully will. Focus on the people willing to stand beside you while you walk through it. When you do find "those rare individuals” that are willing to walk through it with you, hold onto them. I find it’s difficult and exhausting to be with someone who will not listen, and not judge—or they question how you are feeling, or why you’re not better, or why is someone else better and you’re not, or they don’t understand there are days you just don’t feel good or up to doing anything. Then there’s the comparisons which make you feel worse yet—or they just plain not believe you and that you’re exaggerating or making it all up. Or completely abandon you when you’re at your worst. 

🔅When having unrelenting widespread pain and achiness, sluggishness, flu-like feelings to where you don’t want to get out of bed, your circle of "true" people dwindles. I’m tired of trying to convince some people—it’s exhausting. Especially when you’re bombarded with 20 questions. The struggle is real. There’s nothing more than I’d like to have than to be a part of a “normal” conversation with someone without health issues being mentioned. 

🔅Nobody will truly understand until they experience it first hand. They may say they do, but in all honesty, they do not.



No comments: